I’ll miss my room at the rehabilitation hospital. Or no, I’m miss the entire place. I was spoiled the entire time. I’ve never been taken care of my entire life like I was here. The attention and respect the staff gave me was outstanding. I had to ask them not to disturb me as much. They said o.k. but continued and I never brought it up again. A lot of times in the evening no one came in to check on me but I could see them going in and out of the rooms around me. After a while I finally told the nurse that I feel like I’ve been forgotten. She told me I’m one of the few that never pushes the call button. I never wanted to bother them, they looked too busy. The only time I asked for anything was when they brought my meals in. They always said they’d let the nurse know. I never knew who was and wasn’t a nurse. When the nurse did come in with the med cart and to check my vitals she always asked my pain level from 1 to 10. I always said 9 and the meds weren’t helping. A few days later she comes in and said if I need pain meds just ask. So I did. Dilaudid did absolutely nothing, after several tries even with the IV, they tried a combination. This caused me to have a seizure. I was completely aware of what was going on but had no control over anything. My right hand started flinching and it felt like cold air blowing on it, when I look down at my hand I lost control of my neck. It was like my neck folded and cut off my breathing. That’s when a lot of people came running in the room. One lady was holding my head up as they laid me back in the bed. When I finally got control I couldn’t speak no matter how hard I tried my mouth wouldn’t let words come out. That was scary. After that my meds were given to me in intervals but I still could ask for pain meds anytime I wanted them. Now they were Oxycontin tablets which kind of scared me. I don’t want to be a pill addict except I’m not craving them as a buzz, I need them when I can’t hold out any longer.
The other thing I liked was the food. The place had their own cooks and I wasn’t on any special diet. I had a big menu to order anything I wanted, and I did. They fed me well and nothing I had was bad. I ate everything I ordered.
One other thing was my bed. When I went to my three hours a day physical therapy (which is a whole other story) I’d come back to all new sheets and pillow cases, the bathroom was clean and trash taken out. I was suppose to stay until May 22 but they came in on May 15 and told me I was leaving on the 17th. I didn’t want to leave, I had another week but they felt I was o.k. to go home. My last day I got up, took a bath and dressed myself. The ride home kept changing times. First it was 11am, then it was 4pm, then 6:30pm. They finally show up at 7:30pm and they wheeled me into a transportation bus and strapped me in. I was kind of afraid to go home on my own but every morning I wake up something new is going on inside me. Sometimes it’s good and other time, like today, it’s horrible. One thing I’m learning is the nervous system is a strange thing, the other thing I’m finding out is nerves repairing themselves is the most agonizing pain I’ve ever endured. I’m working on a drawing I came up with while I was here. Sitting up for any length of time is a little painful but I’ll get it done.